Newsletter No.
004
Welcome
to number 4 of Northants
Parkinson’s People Bulletin.
Well isn't the year going
quickly. We hope you have
enjoyed the previous
issues but if you missed these
and would like to see them
either see our ARCHIVE
or email Sylvia at: [email protected] and
she will gladly sent any you
have missed.
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NYPSG
holiday to Torquay
July 2019
Carlene
and John Byland report
on the Recent
Northampton Younger
Parkinson's Support
group holiday to Torquay
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We
set out on our holiday on July
1st. The weather was perfect
warm and sunny and the hotel was
lovely. The food was great, so
were the staff, very kind and
helpful. There was entertainment
in the evening and even a trip
to the theatre (at an extra
cost). The group went on two day
trips, one to Exeter and other
places nearby. The next trip
was to Exmouth,both of which
were enjoyed by everyone.
There was lots to do and see in
Torquay. John and I went on an
open top old bus on a
Sight-seeing trip.
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We
went to Babbacombe downs,
Meadfoot Beach, along Torquay's
seafront,then on to Preston
Sands where we stopped to have
an ice cream and a cuppa.
Finally we went to Paignton and
made our way back to Torquay.
There was friendly banter from
our tour operator, who talked
all about the different areas
We had a lovely time with our
friends from the NYPSG. Now we
are looking forward to next year
when hopefully there will be
another lovely holiday. Well
done Sue for taking over the
booking of the holiday trips
from Jean. Thanks Jean for all
the happy holidays you
organized, and not forgetting
Liz for the lovely Isle of Wight
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Northampton
Younger Parkinson's
Support Group
Upcoming Events
Our next support meeting will be
on Saturday 3rd August at
10:30am at The Barratt Sports
and Social Club, 42 Kingsthorpe
Road, Northants, NN2 6HT
starting at 10.30 am. Free
coffee/tea on arrival.
We
will be having a Bring and Buy
to raise funds for the group -
all items gratefully received.
We hope to see you soon.
For more details call Sue: (H) 01933
274856 (M) 07785
584793 email: [email protected]
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The
'Younger Chaps Group'
A
great example of people with
Parkinson's extending the hand
of friendship and support to
others affected by Parkinson's
is the 'Younger Chaps Group' -
working title as they haven't
decided on an official name as
yet. This group of new friends
meet every month or so. Mostly
they have a meal at a local pub
but have tried bowling and
snooker.
This is a simple model of
support and the group were
introduced by Angela who felt
they would all benefit by being
in touch with others in similar
situations. The plan worked and
they have a joke and a laugh but
also help each other with the
more difficult issues that
Parkinson's can sometimes
bring.
If you are interested in being
included in the next outing
telephone Angela 07954 099 537
who will pass your details on.
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The
NHS is now available on
Alexa
The
National Health and Amazon
have teamed up to provide
Health information via
Amazons Voice activated
Echo devices. The Voice
service is available via
Echo devices and is also
available on smart phones,
PC and laptops. So is it any
good? Only one way to find
out. Test it!
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I tested
the new Health info feature over
the last day or two and it seems
quite comprehensive and very quick
to answer.
'Alexa, what are the symptoms of
Parkinson's disease?'
A. 'According the NHS England, the
three main symptoms are.. and a
concise answer came out
Onto other questions.
What are the symptoms of
Progressive Supranuclear Palsy?
How do you treat Haemorrhoids?
What is the best way to stop a
nosebleed?
How do you treat a swollen
Achilles tendon?
and so on until i couldn't think
of any more , several of the
answers referenced Harvard Medical
school instead of NHS but all
answered well and comprehensively
offering practical treatments
where applicable.
Amazon must now have
me pegged as a raving
Hypochondriac and would be
sending me adverts for all
sorts of surgical appliances,
Good job I use an ad-blocker
I must admit we already have two
Echo dot devices in our house, one
in the living room and one in the
kitchen. I bought them to try to
make life easier for both of us.
They are set up so they give
basic control of the TV, several
lights and sockets and also to
issue reminders at set times. They
allow me to 'drop in' on the
living room from the kitchen to
check up or ask preferences for a
meal I'm preparing. I'm sure they
could do more but sometimes you
have to keep thing basic until all
the household gets used to this
newfangled stuff.
We have had teething problems. The
command 'Alexa, turn the TV to
channel 17' worked every time for
me, however Di would say 'Alexa
can you turn the television to
channel 17 please' and it would
not work, however I could re-issue
the command from the kitchen and
all would be well.
Sometimes the AI system behind the
voice would surprise us, if we ask
a command or question and say
thank you, Alexa will say 'Your
welcome'. Say goodnight and and
you get a range of replies from
'goodnight' to 'good night sleep
tight, don't let the bed bugs
bite'
So are these devices safe?
Some press articles have suggested
your privacy is at risk with these
always on listening devices.
Well its true to a degree, your
voice gets recorded under certain
circumstances. But I think the
risk of invasion of privacy is
outweighed by convenience and the
help these devices can give. I
wouldn't be calling out my credit
card pin number in front of her
(it) though.
Weighing things up.
Amazon has sold 100 MILLION of
these devices, their technology
division which designs, supports
and improves the echo services
employs a total of 10,000 people.
Even if ALL of these were actively
listening to recordings they would
all need to listen to 10,000 each
to hear everything.
One of the things Alexa does
really well is reminders, Pill
reminders, appointment reminders,
it does this pleasantly and there
are no cancel buttons for those
with dexterity problems
As a comparison (Olympus Care will
sell you a Memrabell Pill reminder
for £124, all of the functions
included could be performed by
the Echo Show 5 (£78**) and most
of the functions could be
performed by the echo Dot (£24**)
** Not including a working
internet connection)
Because it is internet based you
do not need to be tech savvy,
family or friends can (securely)
access your account and set up
reminders and alarms etc.
You can enable Alexa skills to add
skills for nearly everything. Too
many to list but here are some we
like.
Alexa, create a list called
Shopping, or To-do or Holiday
Stuff or anything. Alexa will let
you add and delete things and will
say the list to you.
Alternatively see the list on
your mobile phone.
Alexa, add Chocolate biscuits to
the shopping list. (see the list
on your smartphone when in Tesco
or Lidl)
Alexa, play BBC Radio Northampton,
or any other radio station
Alexa, what is the
weather/time/news? Set this for
location and news subjects.
Alexa, Play Pointless/The
Chase/Deal or no Deal and a lot of
other games.
Alexa, read my kindle ebook to me
Alexa, what's on TV tonight?
Plus lots of memory functions,
Guard dog sounds for when you are
out and relaxation sounds to get
you to sleep.
If you want to know more about
Alexa there is a very useful
website called The Helping Home. A
site dedicated to Ageing in place
at home. Its American but it has
lots of advice on Home
modifications and assistive
devices.
The site is here: https://thehelpinghome.com/
The Alexa guide is here: https://thehelpinghome.com/alexa-for-seniors-21-extremely-practical-ways-older-adults-can-use-amazon-echo/
Phil |
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Angela
Jeffery
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For
the past 10 years I have been
delighted that we have been
privileged to have Angela as our
branch Parkinson's Adviser. Many
of us are very sad that Angela
will no longer carry out this
role ,although were aware that
that role was becoming rather
restricted and reduced by
Parkinson's U.K. She will be
very much missed .
Angela's visits were always
lively, helpful and uplifting,
this is apparent from all the
lovely remarks I have been
receiving from members since we
heard the sad news. It is
without doubt that everyone felt
more confident and
greatly uplifted after her
visits .
Angela gave a great deal of her
own time and energy improving
the wellbeing and fitness of
people with Parkinson's and
their loved ones and connecting
people with professionals and
people with like problems [a
problem shared ]. Always giving
far more than the 17 hours paid
work, I know her car has
delivered many a commode and
item of equipment !
From the bottom of our hearts
Angela we send you our love and
best wishes for the future.
THANK
YOU THANK YOU THANK
YOU
Val Hamblin
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I
REMEMBER
Part
Four of
Doug's memories
of his Army
Service days
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Place.
Junior leaders battalion
RAOC
Time.
November /December 1959
Now
after the summer and autumn
camps and exercises, we are
well into the daily routine
and getting used to the
discipline. But now winter
was drawing nigh, the
heating was not the
greatest. Consisting of one
stove in each room (no
radiators) burning coal.
Each room had a rota to keep
the stove going all day and
make sure that there's
enough coal. With this
onerous duty came great
responsibility. We shortly
found out that very often
the coal supply for the day
would have reached its limit
which meant finding a
solution rapidly or no
heat.
On
the first occasion that this
occurred on my watch I
resolved the problem by
wandering around to another
house and then purloining a
couple of buckets of coal. I
didn't tell anyone.
The
next day nobody queried the
loss of the coal from the
other house. So I let it go
but I did remark to one of
the senior boy's that our
House's stock was running
low. Later in the day he
came back to me and said
that I was right and the
stock was more than just
low. We went to the coal
store for our house and
there was a significant
amount missing. So I quietly
explained what happened the
day before and that I taken
it because the quarter
masters store was closed. He
said no problem but this was
happening all over the camp
so he asked if I was up for
rectifying our shortage, I
agreed and he went to get
some mates to help in our
upcoming enterprise.
Later
that night after lights out
I was awakened by Phil
Simmons (the senior boy)
"come on buck's" he said
"get dressed". So I did and
followed him out of the
block to meet a couple of
his friends. Of we went
slipping through the night
using the shadows to hide
us. Of course this was the
first time I had done
anything like this before
and I found it exhilarating.
After around 20 minutes we
made it undetected past the
camp perimeter patrols.
These were supplied by the
regimental depot across the
road from our camp (we were
not allowed to mount guard
due to our age). Evading
detection we managed to make
our way back to the block
with a bucket of coal each
and each night for 3 nights
we succeeded in our efforts.
We then had a meeting and
decided we would call a halt
to the enterprise.
After
a couple of days we heard
that a group of lads from
another house got caught
doing the same thing. So we
decided that we were lucky,
but in the end there was a
good outcome. The senior
boys in question had a quiet
word with our house sergeant
and the amount of fuel
issued was increased. They
could have done that in the
beginning but it would not
have been as much fun.
Until
the next time
Doug
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Brainteaser
Colours
: Find the colours to fit the
grid. To let you know its not
just the colours of the rainbow
we are looking for, Here are TWO
clues to get you going.
OLIVE
CORAL
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Sylvia's
Gardening Tips.
Tomatoes
are coming on a treat. Now
is the time to cut off the
bottom two layers of leaves to
allow the air to circulate
through the plant helping to
set and ripen the fruit.
Picture 1
Cucumbers so easy to grow both
in the greenhouse and outdoors
in pots, tubs or old buckets.
I have two types . The first
is just a straight forward
everyday type of cucumber.
Picture no.3
The second cucumber is new to
me. It’s a lemon
cucumber..doesn’t taste like
lemon but looks like one.
Picture 2
The most common disease
affecting cucumbers is powdery
mildew. Picture no, 4
It won’t kill off the cucumber
plant but will sap it of its
nutrients.
The cure? Mix one part
dental mouthwash with three
parts water and one teaspoon
bicarbonate soda and spray.
It works!
One little tip for this month.
Do carry on dead heading
flowering plants and they will
reward you with blooms right
through to end September.
Happy gardening. Good for
body and soul
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Tomatoes
are coming along. |
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Lemon
Cucumber |
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Cucumbers, a bit wonky! but still
tasty |
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Powdery
Mildew |
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Parkinson’s
Disease
Take a Walk with
me.
Last
Month we began an
extract from Simons book
(Chapter 2: Pushing
back the walls of the
Bubble) Now we have the
2nd part of this chapter
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...all
I know is when I was asked if I
wanted to ride the cable from
pier to beach I immediately said
I would.
Looking back, the impromptu
decision I made to take a ride
on a zip wire set up from the
end of the Bournemouth pier was
a big part of the fun activities
at the show. If I’m being
honest, I’m almost certain I
wouldn’t have done it if I’d
have been fit and well, siting
the length of the queue or the
fuss and bother of the time away
from the family as perfectly
legitimate reasons why it would
have been too much bother.
Anyway, I could do it the next
time we attended the show… blah,
blah, blah. The fact I completed
the challenge mean that years
later I’m still ‘pushing back
the walls of the bubble’ by
simply writing about it.
Once in the queue, progress
seemed to take an age. The
disease gaining the perfect
opportunity to cast doubt in my
mind. Once you’ve let
Parkinson’s feature in your
thinking it can cause havoc with
your plans. Instead of a
sequence of rational thoughts
seeing you complete a task or
explore an idea, a series of
knee-jerk reactions control that
can leave you feeling isolated
and confused.
Most people suffering with one
of the most common symptoms of
Parkinson’s [tremor] will tell
you that if you continue to
focus on the negatives then your
ability to partially control the
‘shakes’ becomes impossible.
This often leads to episodes of
freezing, a situation where your
feet become fixed to the floor
for a totally random period!
The slow progress to the
starting gate (or perhaps fear
of the zip-wire itself) meant
that more and more people had
decided they’d had enough of
waiting in-line, a steady flow
of people exiting the queue at
regular intervals. The exit
points were at their busiest
when the wobbly spiral staircase
taking you up to the starting
platform came into view.
A considerable test of
character, a sort of ‘leap of
faith’ was needed to take your
place on the fabricated stairs
as their temporary nature seemed
to make them less than sturdy!
However, at no time did I feel
particularly unsafe. Indeed, I
was almost welded in to my
safety suit even before the
final clip was locked in
position almost preventing me
from moving…and breathing. What
did seem a little futile though
was a safety ‘hard’ hat made
from the thinnest gauge plastic
I’d ever seen. Certainly, I’ve
seen more substantial paper hats
coming out of Christmas
crackers.
I’ve been a little sceptical
about the effectiveness of
safety equipment since Hayley
and I spent our fortnight away
from work in Portugal in the
July of 1997.
Portugal 1997
Unless you are an avid
sun-worshipper, a complete
change of your daily routine can
only hold your attention for a
few days before that too becomes
a little tired and jaded. When
the walk down to the sunbeds and
a dip in the swimming pool are
the most exciting part of your
day, it’s time to try something
different.
Seeking a change of scenery,
Hayley and I decided to take a
cab to Villamoura. A stunning
marina full of beautiful
restaurants, shops and some
smaller units advertising
everything from boat trips to
Paragliding.
We sat and listened to a
discussion between one of the
Paragliding team members and a
family of three. Although I
believe my tolerance towards our
European cousins on the whole is
pretty good, when you get down
the list of countries reaching
France and Germany, I do have to
work significantly harder to
remain ‘balanced’.
Believing the family to be
German (Shamefully, based
entirely on the accent of the
father of the family) I nearly
walked-off. The thought of
spending time on a boat off the
coast of Portugal in the middle
of the Mediterranean, trying to
make small talk with a German
couple and their son not
anywhere close to topping my ‘To
Do list’. After a public
dressing down from Hayley, ‘we’
decided to press on. I’m so glad
we did! The Germans went first,
surprise!
All seemed well as he donned the
safety-harness and hat before
walking to the platform at the
back of the boat. The parachute
was connected, a final thumbs-up
and he was off.
Instantly, the chute climbed
into the blue sky, pulling tight
every strap and clip on the
harness.
Almost immediately, in what I
thought was a Germanic
celebratory song, or at least a
chant to the gods of the
motherland the father began to
turn bright pink as he bellowed
out the words to this less than
catchy tune.
It suddenly occurred to me
that the poor man wasn’t
singing, he was in agony: but
why? All became clear when the
winch being wound back in double
quick time brought the poor chap
back down to the boat, the
safety straps hadn’t been fitted
properly. In what must have been
agony, two heavy duty safety
straps capable of towing a 7.5
tonne truck had been passed
though the man’s legs. In what
must have been a ‘snug’ fit
before take-off must have become
excruciatingly painful the
second the parachute inflated
I must just finish this
section by stating that my
identification of the family as
German was completely
inaccurate, they were Dutch!
It’s easy to make mistakes and
on the grand scheme of things
the last few paragraphs, where
entirely accurate, are not
intended to upset anyone.
Honestly, it just made me
chuckle.
Bournemouth Air Show – August
2016 (Cont’d).
The group in front of us were
all trussed-up and ready to go
were invited to listen to the
Zip-Wire launch instructions;
“Okay ladies and gentlemen, a
member of our safety team will
hook you on to the zip-wire. I
will count down 3..2..1, the
gate will open, all you have you
do is wait for the gate then
take a run and jump…ARE YOU
READY?
All went well, 3..2..1, the gate
opened and they were off. I was
so excited as I’ve always been a
thrill seeker but after my Deep
Brain Stimulation (DBS)
operation in August 2010 I’ve
had to pick and choose the type
of rollercoaster rides I go on
very carefully, any damage to
the hardware fitted in my head,
neck and chest couldn’t be
repaired easily.
Finally, it was our turn.
After what must have been a 45
minute wait we’d finally reached
the front of the queue. Hardly
able to contain my enthusiasm
when the countdown started the
poor chap got as far as 2, the
gate opened prematurely and I
was off!!
I loved every second. All I
could do was apologise to the 3
other members of the family who
came down after me. The fact I
had taken the ride despite the
symptoms of Parkinson’s left me
feeling fully charged for some
time. Indeed, as I’m reading
back through the whole episode
I’m again flushed with pride on
what was achieved on that sunny
day in August 2016
Sadly, despite me feeling as
if I could pilot an RAF Typhoon
jet fighter, the rest of the
family missed the swagger in my
walk as I returned to our spot
on the beach only to find they’d
long since decided to return to
the hotel for the
evening…typical!
I’d just like to mention my
extended family. Each member of
‘Team Ingram’ who are referred
to throughout my book as the
‘cousins’ have at some point
played a starring role in being
overwhelmingly kind and
considerate, often helping me in
ways that can’t be easily
understood by people don’t carry
the burden of the disease.
Anyone wishing to add any
of their own thoughts or ideas
are more than welcome to contact
me on my Facebook page: https://www.facebook.com/simon.ingram.90
Simon Ingram
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Sylvia’s
Chilli Tomato Soup
1 to 1 and quarter kgs ripe
tomatoes
1 medium onion
1 medium carrot
1 celery stick
2 tablespoons olive oil
2 teaspoons tomato purée
Good pinch sugar
2 bay leaves
2 pints vegetable stock ( made
from stock cubes)
2 garlic cloves chopped (optional)
Good handful fresh basil
1 small red chilli or a good pinch
dried chilli flakes (optional)
Black pepper to taste
- Wash
tomatoes and cut into
quarters...cut out the hard
stalk bits. Roughly chop
onion, carrot , celery and
chilli
- Put
olive oil in large pan and
heat over low heat. When hot
add chopped veg and stir with
wooden spoon. Cook gently
until soft and faintly
coloured. Approx ten minutes.
Stir often to prevent
sticking.
- Add
tomato purée and stir until
veg looks a bit red. Throw
the tomatoes in with sugar and
black pepper. Tear two bay
leaves roughly and put in pan.
Stir everything together
then put lid on pan. Stew
the mixture gently for ten
minutes stirring
occasionally. Slowly pour in
the hot vegetable stock.
Then turn up the heat until
everything is bubbling then
turn heat to low and put lid
back on pan.
- Cook
for 25 minutes on low stirring
a couple times.
- Remove
the pan from the heat, stand
back and take lid off
saucepan. Fish out the bay
leaves and throw them away.
- Now
you can either pour mixture
into a blender or, as I do,
use a stick mixer and blitz
until smooth while still in
the saucepan. This soup can be
frozen for 4-5 months.
- I
usually make double the
quantity and freeze it to eat
in the winter. It can be
eaten warmed up or chilled
with a swirl of cream on the
top.
YUM |
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We
aim to...
We
aim to be an inclusive
group so if you have
an idea for an article
that you think would
be of interest then
get your idea to us.
You don't have to be a
journalist, and if you
find trouble getting
your idea onto paper
or email we'll give
you a helping hand
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Brain
Teaser Solution
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We have a community
facebook page, here is the link
please like and share: https://www.facebook.com/northantsparkinsonspeople/
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And
Finally... One
small step for
(a) man
50
years, it has soon
passed, I chose this
photo of Astronaugt Joe
O'Connor taking a break
from testing an early
version of the Apollo
spacesuit at Apollo Mesa
Dike in Arizona. Could
find no info on whether
Joe actually got into
space. But this only
highlights that many,
many people worked on
Apollo and only 12 ever
got to the moon. Oh and
Neil Armstrong ad libbed
the (a) into his famous
(scripted) words.
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